19 Sep 16
Following a declaration adopted by the European Parliament last week urging Member States to improve the care of those living with the fatal lung disease Idiopathic Pulmonary Fibrosis (IPF), Roche is launching the global Fight IPF campaign during IPF World Week (17 – 25 September), to raise awareness of this little known disease, and ensure there is more information and support for people diagnosed with the disease, and their loved ones.
In a powerful and emotionally-charged rendition of Rachel Platten’s inspirational hit ‘Fight Song’, the children and grandchildren of people with IPF have come together – accompanied by Myleene – to urge their parents and grandparents to continue to stand up to IPF by learning more about their disease so that they can make more informed decisions, enabling them to strive for their goals and fight for more tomorrows.
Myleene Klass, commented: “As a musician and a mother, I feel privileged to be part of this campaign which has touched the hearts of us all. Music has this amazing ability to lift the soul and makes you feel proud and celebratory for all the things you have. So I hope that through the power of music we can inspire people with IPF to embrace living in the moment and continue to live their lives the best way in which they can.”
The emotive campaign aims to empower the 15,000 people in the UK1 and 110,000 people in Europe living with IPF and their families to stand up to IPF. The video, which launches to mark the start of IPF World Week (17-25 September), can be viewed at fightipf.co.uk – a new online hub designed to inform and empower patients diagnosed with IPF and their family members.
Action for Pulmonary Fibrosis (APF) and other patient organisations globally worked with Roche to support the participation of IPF patients and their families in the Fight IPF Choir - highlighting what living with IPF means.
In most cases, IPF is eventually fatal, due to respiratory failure, however earlier diagnosis, patient support and information, and learning how to manage the condition can help symptoms as well as slow down the progression of the disease. This is why it is crucial that patients are able to have informed conversations with their clinicians.
For more information visit www.fightipf.co.uk